Publications

What is Down syndrome? What causes Down syndrome? How is Down syndrome diagnosed? We cover your questions and more in this overview!

An overview of Down syndrome written especially for parents. Includes sections on healthy starts, early intervention therapies, how to find support and care for your family, and what the future holds. *Email info@ndss.org if you are looking to purchase bulk orders.

NDSS, Global Down Syndrome Foundation and National Down Syndrome Congress have collaborated to co-publish an important resource for expectant and new parents.

Down Syndrome: Guidelines for Inclusive Education is the first document of its kind in the United States. The document addresses the education settings that support students with Down syndrome, covering the period from early intervention and primary education through secondary and through higher education, with the primary focus being K-12 students.

This guide intends to provide direction, advice, and information and present a collection of resources that you can use to help you navigate your transition to adulthood as smoothly as possible.

Download Transition Guide

The Primary Care Provider’s (PCPs) Guide to Women’s Health and Down Syndrome is a comprehensive resource designed to educate PCPs about the nuanced healthcare needs of women with Down syndrome and provide strategies to care for this patient population.

NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the National Alliance for Caregiving (NAC), released this guidebook to offer information on how to navigate caregiving for an individual with Down syndrome as they age.

NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the Alzheimer’s Association, released the second edition of this guidebook with the intention of providing guidance, education, and support to families and caregivers of older adults with Down syndrome.  

 NDSS is proud to partner with the Voya Cares® program at Voya Financial to provide comprehensive information and solutions to address the unique, and oftentimes fluctuating, financial needs of the disability community. Our Financial Wellness guide for individuals with disabilities, their families and caregivers is available to download below!

NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices and the Alzheimer’s Association, released a guidebook specifically for those caring for an individual with Down syndrome diagnosed with Alzheimer’s disease. NDSS is here for caregivers every step of the way by also providing resources about Alzheimer’s disease gathered into one collective guide. *Please email info@ndss.org if you are looking to purchase bulk orders.

NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the Alzheimer’s Association, released this guidebook with the aim to provide guidance for the crossroads and decisions that arise in late life and at the end of life. *Please email info@ndss.org if you are looking to purchase bulk orders.

Eleven artists with Down syndrome from across the country share what they are dreaming about, everything from NYC to pizza, flowers to cake, in this EXCLUSIVE coloring book!

Download the coloring book today and share your pictures with us! A special thank you to the French family and all of the artists for sharing their work.